What can happen when you are rocking your 3 year old to sleep on Good Friday evening:
Jacob : "Mommy,... I am sick?"
Mom: "Is your tummy still feels sick, or are other parts feeling yucky?"
Jacob: ( with shy manners and voice ) "other parts, too!"
Mom: "Like what parts"
Jacob: " My BONES.... ( a pause) and my heart feels yucky."
Mom: "Your Bones and your heart"
Jacob: "Yeah! you know where Jesus is. In my heart,... how can he get out!" "He is not there at Church, he is gone. How can he get out! my heart feels yucky!"
We went to Church today to do a children's station of the cross. Honestly, I didn't think the kids had gotten anything out of it. But Jacob did notice that all the picutres and statues where covered in purple cloth, and most obviously that the tabernacle was wide open and empty. We talked about how Jesus was hiding in the tomb, and that is why we has not there.
So.. I held my little boy on my lap and told him that Jesus can't get out of his heart. That Jesus is still in his heart. Why he asked. Because he loves you very much. And that tomorrow night, we will celebraet Jesus coming back alive.
Friday, April 10, 2009
Wednesday, April 8, 2009
Jacob child of God
Joey has been leading the RCIA candidates this year. RCIA means Rite of Christian Initiation for Adults. The candidates are those being baptized and/ or confirmed.
We had been praying asking God where he wanted us to serve him. We were tired of doing ministry just for doing ministry. We really wanted to serve him , where he wanted us and needed us. Last spring, we felt God lead us to RCIA. Our response was God that is such a Huge job, we don't think we can do it with our three young children... but if you really want us to do it, how about we just take care of arranging the teaching for the candidates. At our Parish, the RCIA is a from October to Easter. The group of candidates and leaders met on a weekly basis and learn the faith. There is also some special liturgies celebrated through the year. We shared this with some friend, and they told us that we should probably just hold off on this ministry for a few more years, that if we took it we would have do it all.
On my birthday, Sept 10th: We went to a meeting a church. Joey took the time to speak with our new pastor. He expressed his desire to help in Ministry and that he was available one night a week. Within a few days, our pastor called and asked him to help out as leader for the RCIA program. WOW.... We were so excited.
I have helped out by doing a few of the teaching for the group (1) Heaven, Hell and Purgatory 2) Holy Spirit 3) Sacrament of Anointing of the Sick and how God heals 4) Discerning God's Will for us ) and we hosted a few meals at our home.
This has been the first time either of us have done ministry when it has not seemed like work and it has full embraced our souls. We love the people, and it has been such a privildge to get to know them and share in their walk of faith.
As many of you know, I believe that children have a part to play in all area of faith and that we include our children in all what we do. Hence, It is no surprise that at the closing RCIA night the children were with us.
Here is parts of what one of the candidates for Baptism shared in a note on facebook....
"Tonight I learnt an important lesson that I'll probably hold in my heart for my life. Today was my last RCIA night before I join the Catholic Church. Needless to say, a *big* deal. The group gathered to have a potluck and learn about what would be happening at the Easter Vigil.
Afterwards, I was asked if I wanted to go "see Jesus". St. Mary's has an adoration chapel, and I'll admit I do enjoy it. Mostly because my life is filled with noise, it's nice to go somewhere *quiet* to talk to God. So I went... with Jacob.
Jacob is the adorable oldest child of Roxanne & Joey Paul. Joey is the one who runs the RCIA program (with Roxanne, lol) and Roxanne has actually agreed to by my spiritual director. Pretty awesome family. They also have 20 month old twins - Esther & Daniel!
Anyways...
So Jacob and I wandered over to the chapel. We entered, and he blessed himself with the holy water. (I didn't, because I'm not baptized yet). We sat, he handed me a Bible. I thanked God for my experiences. In that moment, also for Jacob - because his demeanor when entering the chapel had changed. He... had some sort of faith that I can't even describe.
I opened the Bible... and it fell open to this passage.
Psalm 133 (which I hadn't read before)
Psalm 133
A song of ascents. Of David.
1 How good and pleasant it is
when brothers live together in unity!
2 It is like precious oil poured on the head,
running down on the beard,
running down on Aaron's beard,
down upon the collar of his robes.
3 It is as if the dew of Hermon
were falling on Mount Zion.
For there the LORD bestows his blessing,
even life forevermore.
Lots of stuff to think about there. Also, appropriate given the upcoming celebration I'd think!
It made me think back to something someone asked me."
Christina went on to write several spiritual revelationa and spirtitual truths that sheGOd showed her and what she thought of in the moments in adorations and later that evening.
Christina then adds ...
"But in a conclusion from my beginning story...
Jacob took me to the Adoration Chapel. I read the Bible. I asked him if he wanted to leave. He nodded, and we headed to the door. Before we left though... he dipped his finger in the Holy Water and drew a cross on my forehead. Then he did the same for himself.
He didn't even ask me if I wanted it. He didn't say anything about it.
But it meant enough to him. The simple action, which means such a profound thing.
I wish I had the faith of a child. I wish I had the faith of *this* child. I wish I could see God in the tabernacle like Jacob does. I wish I could take such simple pleasure in going to see Jesus as he seems to. Jacob seemed more enthusiastic in going to see Jesus there for the 2nd time that night than I was... although I love prayer. I just wasn't feeling it. But that changed when I was there. Obviously. ;)
Jacob showed me something that I didn't even realize. That it's NOT about what I think people think about me (after all, I admit Jacob and I broke the "no talking" rule there). It's not about just performing the actions to earn 'brownie points'. It's about having a living and vibrant relationship with God. It's about being in community with others. It's about loving others as they are. I love Jacob for what he's given me. He gave me acceptance and joy without intending to. He also gave me some pretty awesome hugs too! <3
The blessing with holy water (sign of the cross) is supposed to remind us of our baptism.
But I haven't had it yet. So I took it like this...
I am a child of God. God LOVES me already. The baptism just is "icing on the cake". Yes, it's important in its own right, but it's an outward sign of an inward decision. To allow Christ into our lives. To allow God INTO us. The Holy Spirit is infused in us through baptism. Pretty cool I think!
But if I died tomorrow (I pray I don't!) ... then I've already made the decision to allow God to be a part of my life. I'm choosing this, to "live in the third circle". (Only CCO people will understand that one!) I'd be relying on God's mercy to allow me into heaven. Would He? That's not for me to answer.
But apparently I've already been "baptized by desire". And I already qualify for a Catholic funeral if I die before baptism, which is still pretty cool as a promise!
(Now is the point where you all pray that I don't die before Saturday night, okay?)
God loves me. Jesus loves me. I love me, just not as much as God or Jesus!
God loves you. Jesus loves you. I love you, just not as much as God or Jesus! "
In her note on facebook Christina goes on with a final word and a list of songs related to what she has shared including "like a child" by Jars of Clay. I will have to check that song out.
Wow... my little boy was an instrument of God.... This has touched me so much. I guess the hard work and PRAYING is paying off.
We had been praying asking God where he wanted us to serve him. We were tired of doing ministry just for doing ministry. We really wanted to serve him , where he wanted us and needed us. Last spring, we felt God lead us to RCIA. Our response was God that is such a Huge job, we don't think we can do it with our three young children... but if you really want us to do it, how about we just take care of arranging the teaching for the candidates. At our Parish, the RCIA is a from October to Easter. The group of candidates and leaders met on a weekly basis and learn the faith. There is also some special liturgies celebrated through the year. We shared this with some friend, and they told us that we should probably just hold off on this ministry for a few more years, that if we took it we would have do it all.
On my birthday, Sept 10th: We went to a meeting a church. Joey took the time to speak with our new pastor. He expressed his desire to help in Ministry and that he was available one night a week. Within a few days, our pastor called and asked him to help out as leader for the RCIA program. WOW.... We were so excited.
I have helped out by doing a few of the teaching for the group (1) Heaven, Hell and Purgatory 2) Holy Spirit 3) Sacrament of Anointing of the Sick and how God heals 4) Discerning God's Will for us ) and we hosted a few meals at our home.
This has been the first time either of us have done ministry when it has not seemed like work and it has full embraced our souls. We love the people, and it has been such a privildge to get to know them and share in their walk of faith.
As many of you know, I believe that children have a part to play in all area of faith and that we include our children in all what we do. Hence, It is no surprise that at the closing RCIA night the children were with us.
Here is parts of what one of the candidates for Baptism shared in a note on facebook....
"Tonight I learnt an important lesson that I'll probably hold in my heart for my life. Today was my last RCIA night before I join the Catholic Church. Needless to say, a *big* deal. The group gathered to have a potluck and learn about what would be happening at the Easter Vigil.
Afterwards, I was asked if I wanted to go "see Jesus". St. Mary's has an adoration chapel, and I'll admit I do enjoy it. Mostly because my life is filled with noise, it's nice to go somewhere *quiet* to talk to God. So I went... with Jacob.
Jacob is the adorable oldest child of Roxanne & Joey Paul. Joey is the one who runs the RCIA program (with Roxanne, lol) and Roxanne has actually agreed to by my spiritual director. Pretty awesome family. They also have 20 month old twins - Esther & Daniel!
Anyways...
So Jacob and I wandered over to the chapel. We entered, and he blessed himself with the holy water. (I didn't, because I'm not baptized yet). We sat, he handed me a Bible. I thanked God for my experiences. In that moment, also for Jacob - because his demeanor when entering the chapel had changed. He... had some sort of faith that I can't even describe.
I opened the Bible... and it fell open to this passage.
Psalm 133 (which I hadn't read before)
Psalm 133
A song of ascents. Of David.
1 How good and pleasant it is
when brothers live together in unity!
2 It is like precious oil poured on the head,
running down on the beard,
running down on Aaron's beard,
down upon the collar of his robes.
3 It is as if the dew of Hermon
were falling on Mount Zion.
For there the LORD bestows his blessing,
even life forevermore.
Lots of stuff to think about there. Also, appropriate given the upcoming celebration I'd think!
It made me think back to something someone asked me."
Christina went on to write several spiritual revelationa and spirtitual truths that sheGOd showed her and what she thought of in the moments in adorations and later that evening.
Christina then adds ...
"But in a conclusion from my beginning story...
Jacob took me to the Adoration Chapel. I read the Bible. I asked him if he wanted to leave. He nodded, and we headed to the door. Before we left though... he dipped his finger in the Holy Water and drew a cross on my forehead. Then he did the same for himself.
He didn't even ask me if I wanted it. He didn't say anything about it.
But it meant enough to him. The simple action, which means such a profound thing.
I wish I had the faith of a child. I wish I had the faith of *this* child. I wish I could see God in the tabernacle like Jacob does. I wish I could take such simple pleasure in going to see Jesus as he seems to. Jacob seemed more enthusiastic in going to see Jesus there for the 2nd time that night than I was... although I love prayer. I just wasn't feeling it. But that changed when I was there. Obviously. ;)
Jacob showed me something that I didn't even realize. That it's NOT about what I think people think about me (after all, I admit Jacob and I broke the "no talking" rule there). It's not about just performing the actions to earn 'brownie points'. It's about having a living and vibrant relationship with God. It's about being in community with others. It's about loving others as they are. I love Jacob for what he's given me. He gave me acceptance and joy without intending to. He also gave me some pretty awesome hugs too! <3
The blessing with holy water (sign of the cross) is supposed to remind us of our baptism.
But I haven't had it yet. So I took it like this...
I am a child of God. God LOVES me already. The baptism just is "icing on the cake". Yes, it's important in its own right, but it's an outward sign of an inward decision. To allow Christ into our lives. To allow God INTO us. The Holy Spirit is infused in us through baptism. Pretty cool I think!
But if I died tomorrow (I pray I don't!) ... then I've already made the decision to allow God to be a part of my life. I'm choosing this, to "live in the third circle". (Only CCO people will understand that one!) I'd be relying on God's mercy to allow me into heaven. Would He? That's not for me to answer.
But apparently I've already been "baptized by desire". And I already qualify for a Catholic funeral if I die before baptism, which is still pretty cool as a promise!
(Now is the point where you all pray that I don't die before Saturday night, okay?)
God loves me. Jesus loves me. I love me, just not as much as God or Jesus!
God loves you. Jesus loves you. I love you, just not as much as God or Jesus! "
In her note on facebook Christina goes on with a final word and a list of songs related to what she has shared including "like a child" by Jars of Clay. I will have to check that song out.
Wow... my little boy was an instrument of God.... This has touched me so much. I guess the hard work and PRAYING is paying off.
Saturday, April 4, 2009
The worry free weekend at the Paul's
Daniel, Esther and Jacob have been enjoying being healthy children with parents who don't nee dto worry about their health. What joy! However, Joey and I have been under the weather dealing with some gastro issues/ bugs.... it seems the stress of the last several weeks is escaping our bodies.
All that aside, we enjoyed a family outing the Ray't little reptiles today where we all observed a snake eat a mouse! Both Jacob and Esther were cuddled in to me. They were pretending not to watch but couldn't take their eyes off what they were seeing! Esther even feed a lizard a live bug. What a girl. Daniel loved the show, he was jsut getting tired by the end of it. We then headed off to Sushi Kan (where children 4 and under eat free) and feasted on some Sushi and other great food. Jacob's favorite food is Sushi. Esther agrees with him, and Daniel well... he is more like Granpa... meat and potatoes!
I am presently composing a document to give input to the CCCB (Canadian Conference of Catholic Bishops) regarding spiritual development for children from Birth to age 3. Please pray for me druing this composing time. I will find a way to post that information on here once the document in completed. I am in a time crush to get it done by Easter Monday.
All that aside, we enjoyed a family outing the Ray't little reptiles today where we all observed a snake eat a mouse! Both Jacob and Esther were cuddled in to me. They were pretending not to watch but couldn't take their eyes off what they were seeing! Esther even feed a lizard a live bug. What a girl. Daniel loved the show, he was jsut getting tired by the end of it. We then headed off to Sushi Kan (where children 4 and under eat free) and feasted on some Sushi and other great food. Jacob's favorite food is Sushi. Esther agrees with him, and Daniel well... he is more like Granpa... meat and potatoes!
I am presently composing a document to give input to the CCCB (Canadian Conference of Catholic Bishops) regarding spiritual development for children from Birth to age 3. Please pray for me druing this composing time. I will find a way to post that information on here once the document in completed. I am in a time crush to get it done by Easter Monday.
Wednesday, April 1, 2009
Adrenaline has run out! Now what?
Well the Adrenaline bubble / rush on which I have been surviving for the last several weeks has deflated. I can now relax but I think my body has forgotten how. And the reality is I have three healthy children to look after. Three little people (one 3 1/2 and two 20 month old) that what to play, play, play and discover, discover, discover... wow... and all I want to do is sleep and maybe curl up and read a good book. Neither of them is going to happen. Any advice on how to deal with low energy after running of adrenaline for weeks upon weeks, actually since Feb 3rd... Daniel's first seizure...
Tuesday, March 31, 2009
TEC
Transient erythroblastopenia of childhood (TEC)this is what the doctor diagnosed Daniel had while he was sick. Again, he is healed. He nolonger has to conditons, praise God. Here is some info I found on http://www.drgreene.com/21_808.html,
this a question and answer site... in this describption Dr. green is writting about a little boy, this is not Daniel,... he is writiing about some other other little boy.
"The average life span of a red blood cell is 120 days. Every day, just under 1% of our old red blood cells retire, to be replaced by an equal number of fresh young ones. We depend on this steady supply of new red blood cells. If something were to interrupt this supply, we would be completely out of blood within 120 days, but would probably die within 90 days from not having enough red blood cells to deliver the minimum amount of oxygen needed for life.
Your son's diagnosis, transient erythroblastopenia of childhood (TEC), is a condition in which new red blood cells stop appearing. The children with TEC are otherwise well, so at first nothing appears to be wrong. Each day, though, they lose about 1% of their red blood cells. Very gradually they become tired and pale. After a number of weeks, the children are usually brought to the doctor because this fatigue and pallor become quite noticeable.
The physical examination is usually normal, except for the pallor and an increased heart rate (the heart is working extra hard to pump the limited number of red blood cells around the body faster). The complete blood count (CBC) usually shows normal looking and normal sized red blood cells that are markedly decreased in number. The white blood cells and platelets are usually not affected. Reticulocytes (immature red blood cells) are profoundly fewer than normal, until the child is beginning to recover.
TEC is uncommon, but has been seen with increasing frequency over the last few years. It occurs most commonly between the ages of one and three. TEC is thought to be triggered by a viral infection occurring 2 weeks to 2 months before the TEC. Some investigators have linked TEC to parvovirus B19, the virus that causes Fifth Disease, or Slap Cheek. In a recent study of six children with TEC, however, none of the children tested positive for parvovirus (Archives of Pediatrics, February 1995). There are also researchers who believe there may be a genetic component to TEC, but have yet to identify any responsible gene (Journal of Pediatric Hematology/Oncology, 29(9), Sep 2007, 659-660).
In children with TEC, red blood cell production will recover spontaneously -- usually within 30 to 60 days, but sometimes longer. In some children, transfusions are necessary to keep them alive and decrease their symptoms while waiting for this spontaneous recovery. Transfusions are given when the number of red blood cells is low enough to begin to severely affect the child's health. This usually happens when the measure of red blood cells called the hematocrit ("crit") drops to about 10 or 11, though the “cut-off” for giving a transfusion will be different for each child. A transfusion may be indicated sooner if there are significant symptoms or if there are no signs of early recovery in sight. Steroids have sometimes been given to children with TEC to try to hasten recovery, but this does not seem to be of any value. Iron supplementation may help a little, since iron is needed to build red blood cells.
If TEC occurs outside the normal age range or if recovery is prolonged, further workup should be done. Likewise if the platelets or white blood cells are low in number (they can be mildly low in up to 25% of cases of uncomplicated TEC), or if the red cell size or appearance is unusual, further tests are indicated to rule out other, more serious, conditions (such as leukemia or Diamond-Blackfan anemia).
If your son follows a typical course, his crit will begin to rise within a few weeks. The first sign of recovery will be a rise in his reticulocyte count. I am thankful that transfusions were available to support him until his own bone marrow begins producing red blood cells again.
Alan Greene MD FAAP
Reviewed by: Khanh-Van Le-Bucklin MD & Liat Simkhay Snyder M.D.
Originally published: November 04, 1996
Last reviewed and updated: May 2008"
Praise God, doctor of doctors!
ADVERTISEMENT
this a question and answer site... in this describption Dr. green is writting about a little boy, this is not Daniel,... he is writiing about some other other little boy.
"The average life span of a red blood cell is 120 days. Every day, just under 1% of our old red blood cells retire, to be replaced by an equal number of fresh young ones. We depend on this steady supply of new red blood cells. If something were to interrupt this supply, we would be completely out of blood within 120 days, but would probably die within 90 days from not having enough red blood cells to deliver the minimum amount of oxygen needed for life.
Your son's diagnosis, transient erythroblastopenia of childhood (TEC), is a condition in which new red blood cells stop appearing. The children with TEC are otherwise well, so at first nothing appears to be wrong. Each day, though, they lose about 1% of their red blood cells. Very gradually they become tired and pale. After a number of weeks, the children are usually brought to the doctor because this fatigue and pallor become quite noticeable.
The physical examination is usually normal, except for the pallor and an increased heart rate (the heart is working extra hard to pump the limited number of red blood cells around the body faster). The complete blood count (CBC) usually shows normal looking and normal sized red blood cells that are markedly decreased in number. The white blood cells and platelets are usually not affected. Reticulocytes (immature red blood cells) are profoundly fewer than normal, until the child is beginning to recover.
TEC is uncommon, but has been seen with increasing frequency over the last few years. It occurs most commonly between the ages of one and three. TEC is thought to be triggered by a viral infection occurring 2 weeks to 2 months before the TEC. Some investigators have linked TEC to parvovirus B19, the virus that causes Fifth Disease, or Slap Cheek. In a recent study of six children with TEC, however, none of the children tested positive for parvovirus (Archives of Pediatrics, February 1995). There are also researchers who believe there may be a genetic component to TEC, but have yet to identify any responsible gene (Journal of Pediatric Hematology/Oncology, 29(9), Sep 2007, 659-660).
In children with TEC, red blood cell production will recover spontaneously -- usually within 30 to 60 days, but sometimes longer. In some children, transfusions are necessary to keep them alive and decrease their symptoms while waiting for this spontaneous recovery. Transfusions are given when the number of red blood cells is low enough to begin to severely affect the child's health. This usually happens when the measure of red blood cells called the hematocrit ("crit") drops to about 10 or 11, though the “cut-off” for giving a transfusion will be different for each child. A transfusion may be indicated sooner if there are significant symptoms or if there are no signs of early recovery in sight. Steroids have sometimes been given to children with TEC to try to hasten recovery, but this does not seem to be of any value. Iron supplementation may help a little, since iron is needed to build red blood cells.
If TEC occurs outside the normal age range or if recovery is prolonged, further workup should be done. Likewise if the platelets or white blood cells are low in number (they can be mildly low in up to 25% of cases of uncomplicated TEC), or if the red cell size or appearance is unusual, further tests are indicated to rule out other, more serious, conditions (such as leukemia or Diamond-Blackfan anemia).
If your son follows a typical course, his crit will begin to rise within a few weeks. The first sign of recovery will be a rise in his reticulocyte count. I am thankful that transfusions were available to support him until his own bone marrow begins producing red blood cells again.
Alan Greene MD FAAP
Reviewed by: Khanh-Van Le-Bucklin MD & Liat Simkhay Snyder M.D.
Originally published: November 04, 1996
Last reviewed and updated: May 2008"
Praise God, doctor of doctors!
ADVERTISEMENT
Praise God! Daniel is healed!
Hi All,
Thank you God for healing Daniel. Thank you to all who begged God to heal our little boy.
Once at CHEO this morning, they checked Daniel's vital and then he got to play in the awesome playroom. Daniel then had an IV put in. The IV was to give him fluids and later medication to sedate him for the surgical procedure to biopsy bone marrow. We then saw the doctors. Dr. Johnston, Daniel's hematologist, was very nice. She took the time to go over Jacob's and Esther's blood work. Both of them are fine according to her. Our family doctor wants Jacob's blood sugar tested in a little while just to make sure everything is ok as his HbA1 was slightly low. Dr. Johnston said it would be a good idea to have Esther's blood work done in a few weeks gust to make sure her hemoglobins are climbing and are at good levels, but she is not worried.
Since, Daniel had fallen asleep we were brought to a "quiet" room to wait until they were ready to bring him to the operation room. After a short while in the room, Dr. Johnston came back in the room. She told us that they had jsut received Daniel's blood work from today. We were a little nervous... She told us that his hemoglobin were up to 101... praise God. They had increase from 90 to 101 in 4 days!!!!!! The ricket number (the number of new cells) were at the appropriate levels. She told us they were cancelling the biopsy as his bone marrow had started to produce hemoglobin again.... I started to cry tears of joy. I asked her "This means he is healed?" ... she said "yes!".... He will go back on May 1st, 2009 for a check up with blood work to confirm everyhting is still were we want it to be. She also recommended that we still wait a few months before he receives any vaccinations... but otherwise he is a healthy little boy.... Hurray... Thank you so much for all the prayers/ petition you have sent up to our Lord and King. God has touched me in many ways during this ordeal and your support in physical, emotional, and spirital ways hav ehelp in more ways that I can begins to explain at this time. Now, my children can play with a mommy who is not worried about their health. And I have an house to try to get back into shape.
We are looking to hire someone to come by from 9am to 1:30 am (maybe 2pm) either on Wed. or Friday (would perfer Fridays) to help me get the kids outside to play.... maybe do a little house work... or watch the some kids while I play with the other ones.... if you know anyone interested please let me know.
Daniel will still be on anti-seizure medication for one year due to the amount of seizure he has had... but the keppra (anti-seizure medication) is working well. He is also being followed by "first-words" a speechpatholgy program here in Ottawa due to a large tongue causing difficulties in saying the "e" sound and the long "a" sound.
God bless,
Roxanne
Thank you God for healing Daniel. Thank you to all who begged God to heal our little boy.
Once at CHEO this morning, they checked Daniel's vital and then he got to play in the awesome playroom. Daniel then had an IV put in. The IV was to give him fluids and later medication to sedate him for the surgical procedure to biopsy bone marrow. We then saw the doctors. Dr. Johnston, Daniel's hematologist, was very nice. She took the time to go over Jacob's and Esther's blood work. Both of them are fine according to her. Our family doctor wants Jacob's blood sugar tested in a little while just to make sure everything is ok as his HbA1 was slightly low. Dr. Johnston said it would be a good idea to have Esther's blood work done in a few weeks gust to make sure her hemoglobins are climbing and are at good levels, but she is not worried.
Since, Daniel had fallen asleep we were brought to a "quiet" room to wait until they were ready to bring him to the operation room. After a short while in the room, Dr. Johnston came back in the room. She told us that they had jsut received Daniel's blood work from today. We were a little nervous... She told us that his hemoglobin were up to 101... praise God. They had increase from 90 to 101 in 4 days!!!!!! The ricket number (the number of new cells) were at the appropriate levels. She told us they were cancelling the biopsy as his bone marrow had started to produce hemoglobin again.... I started to cry tears of joy. I asked her "This means he is healed?" ... she said "yes!".... He will go back on May 1st, 2009 for a check up with blood work to confirm everyhting is still were we want it to be. She also recommended that we still wait a few months before he receives any vaccinations... but otherwise he is a healthy little boy.... Hurray... Thank you so much for all the prayers/ petition you have sent up to our Lord and King. God has touched me in many ways during this ordeal and your support in physical, emotional, and spirital ways hav ehelp in more ways that I can begins to explain at this time. Now, my children can play with a mommy who is not worried about their health. And I have an house to try to get back into shape.
We are looking to hire someone to come by from 9am to 1:30 am (maybe 2pm) either on Wed. or Friday (would perfer Fridays) to help me get the kids outside to play.... maybe do a little house work... or watch the some kids while I play with the other ones.... if you know anyone interested please let me know.
Daniel will still be on anti-seizure medication for one year due to the amount of seizure he has had... but the keppra (anti-seizure medication) is working well. He is also being followed by "first-words" a speechpatholgy program here in Ottawa due to a large tongue causing difficulties in saying the "e" sound and the long "a" sound.
God bless,
Roxanne
Monday, March 30, 2009
Jacob test result puzzling
Any nurse or hematologist out there... can you please tell me what a low HbA1 means, and a just a little high HbF,...
Jacob result from his Hg Electrophoresis tests are back:HbA1 94.5% (normal is higher then 96.0%) - hence a little low, HbA2 is 3.4% (normal is 2.0 - 3.5%) - hence he is just a the normal top, and HbF is 2.1% (the normal is below 2.0%) - hence he is just a little high. No hemoglobinapathy detected. From what I can figure out with the internet: hbA1 could relate to blood sugar amount - he was hospitalized as a newborn for low blood sugar was on glucose IV drip for 3 days and then came home on day 4. No one ever checked his blood sugar levels since then.HbA2 is a mistery to meHbF is high when your born and decrease as you age, maybe it is high at age 3 3/4.... I would love your input....Dr. Rabie our family physician will get a call from us tomorrow, inbetween getting Daniel's biospy done.
We still have not received Esther's blood work. With al lthe worry,... those little sleeping aid the doctor gave me should come in handy.
The reason we get the result sent to us, is because our doctor has a hard time getting the result s through her fax machine. So if anyone wants to donate an extra telephone line to Dr. Rabie.. go ahead. But I can't complain to much she and her team are great.
They get double thumbs up from me.
Jacob result from his Hg Electrophoresis tests are back:HbA1 94.5% (normal is higher then 96.0%) - hence a little low, HbA2 is 3.4% (normal is 2.0 - 3.5%) - hence he is just a the normal top, and HbF is 2.1% (the normal is below 2.0%) - hence he is just a little high. No hemoglobinapathy detected. From what I can figure out with the internet: hbA1 could relate to blood sugar amount - he was hospitalized as a newborn for low blood sugar was on glucose IV drip for 3 days and then came home on day 4. No one ever checked his blood sugar levels since then.HbA2 is a mistery to meHbF is high when your born and decrease as you age, maybe it is high at age 3 3/4.... I would love your input....Dr. Rabie our family physician will get a call from us tomorrow, inbetween getting Daniel's biospy done.
We still have not received Esther's blood work. With al lthe worry,... those little sleeping aid the doctor gave me should come in handy.
The reason we get the result sent to us, is because our doctor has a hard time getting the result s through her fax machine. So if anyone wants to donate an extra telephone line to Dr. Rabie.. go ahead. But I can't complain to much she and her team are great.
They get double thumbs up from me.
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